Resources

Welcome to the Cancer Resource Center! We are here to provide support and resources whether you are newly diagnosed, in treatment, or a long-term survivor. We won’t tell you what to do because every situation is different. However, we promise to listen, answer your questions, and guide you to the resources that are most likely to be useful.

 

It is common for people to reach out and say, “I don’t really know what I need.” That’s normal. Going through cancer is a process. How you feel - and what you need - will change over time. Know that we are here for you today, and we will be here for you next month and next year. 

 

Many resources are available on this site and we encourage you to explore the services we offer - including free wigs and head coverings through our boutique, support groups, 1:1 and peer to peer support, and wellness classes to name a few.

 

Also, be sure to check out our Cancer By Type section for more information related to specific cancers. 

 

Resource Links:

Jasper:  A Smart Platform for Your Cancer Care
On a good day, dealing with cancer is complicated. On a bad day, it can feel impossible. For every day, Jasper is here to help. Organize your schedule, lists, and needs—all in one place.

 

Smart Patients:  Patients Share Stories; Research Clinical Trials; Find Information.

 

Medicine Assistance Tool: Provides a search engine for many of the patient assistance resources that the biopharmaceutical industry offers.

 

Cancer Care :  Various online support groups (including a Spanish Speaking group), financial assistance and more.

 

Inspire:  An online community where members can share their experiences.

 

Stupid Cancer:  Stupid Cancer offers a lifeline to the adolescent and young adult cancer community by connecting them to age-appropriate resources and peers who get it.

 

Downloadable Resources:


CancerSimpleWisdomfromOurPets

If you need Boost or Ensure:

 

  • The best resource for nutritional supplies is The Oley Foundation. Through their website, you can request various nutritional supplements and supplies.

While Oley does get some Ensure/Boost products, they mostly receive tube feeding formula and supplies. You do have to pay for shipping.

  • After joining the website and creating a username and password, sign in.
  • Click 'STORE' all the way to the right on the blue banner, then
  • from the drop down menu that says 'All Categories' select 'Supplies - Oral Supplements'. From there you can specify which brand you prefer.

If you can use Ensure, the company that makes it (Abbott) has a patient assistance program. You have to qualify financially, and be 100% dependent on the product, and there is an application process. However, if you do qualify, they usually send you a 3 month supply: Abbott Patient Assistance

  • Call  Nestle (800) 422-2752 and request coupons.
  • There is a closed Facebook group called G-PACT: Supply Depot that is for people to donate and request medical supplies.

 

We do not accept medical supplies. If you have medical supplies to donate, below are some possible options:

 

Marlo Capoccia
607-342-6228 
  • If all else fails, you can check with emergency vets or pig farmers to see if they can use them (nutritional supplements only)

For Caregivers

Care-Givers-2017-Final-WEB

About one-third of our clients don’t have cancer themselves. They’re family members and friends of a person with cancer and they call us because they want to be helpful. They also have their own stresses and challenges.

 

If you are taking care of someone with cancer on a regular basis and are interested in receiving some support by phone, or other types of assistance, please contact Monica Vakiner at 277-0960 or monica@crcfl.net. We are here for you as we are here for your loved one with cancer.


Caregiver Group

  • Join us for our Caregiver Group on the second Tuesday of each month from 5:30-7:00 pm at the Cancer Resource Center

Caregiver Resources

Good Sources of Information

Suggested Books for Caregivers

Models of Sharing Care

Online Support Groups

The following are online resources to consider when you are looking for a place where you can vent your feelings, seek emotional support and information, and make a connection to people who are experiencing many of the same challenges that you are. One note of caution – please take care to respect the privacy of your loved one, share information and your perspective only with receptive audiences, and be cautious about medical information you find online.

  • Caregiver.com: For, About and By Caregivers-many resources, including an online message board where caregivers can share resources, etc.
  • Family Caregiver AllianceCaregiver.org – The Caregiver Online Group is an un-moderated group for families, partners and other caregivers of adults with disorders such as Alzheimer’s, stroke, brain injury and other chronic debilitating health conditions. The group offers a safe place to discuss the stresses, challenges and rewards of providing care for a loved one.
  • Inspire.com and WhatNext.com: Give individuals a way to connect, ask questions, and offer support without the need for discussions to take place in real time.
  • There are also many cancer specific online groups where caregivers can find cancer-specific message boards or discussion groups such as Breastcancer.org and CancerForums.net
  • Well Spouse Association: A nonprofit 501(c)(3) membership organization that advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  They offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day.

Helpful Articles

Local Resources

  • Tompkins County Office for the Aging: Resources for Caregivers in Tompkins County
  • Powerful Tools for Caregivers” is a six session educational program designed to give caregivers the tools to care for themselves. Learn how to reduce stress, increase communication, improve confidence, balance your life, and identify local resources. To register or for more information, call the Tompkins County Office for the Aging at 274-5488.

We have reference books you can use here at the center, an extensive lending library, and a limited number of cd’s. Categories of books and cd’s for lending include: cancer in general, breast and other cancers, complementary/alternative medicines, side effects, nutrition, care giving, mind and body, biographical, social/environmental/political, exercise and relaxation, end of life, humor and inspirational, as well as issues impacting family/children/friends.

 

The library is available during all hours we are open (as long as it’s not being used for a support group or meeting.) If you would like to confirm its availability prior to coming in, just give us a call. Otherwise walk-ins are always welcome.  You can browse our collection of more than 600 titles onlineas well. And as always, all services we provide are free of charge.

National Cancer Organizations

 

We’re a local organization that serves women and men with all types of cancer. There are also national organizations that focus on specific types of cancer, specific issues, and specific populations.


For People with all Types of Cancer

American Cancer Society
CancerCare
Cancer Support Community
LiveStrong
National Cancer Institute
National Coalition for Cancer Survivorship

For Young Adults
Stupid Cancer

Genetic Issues
FORCE: Facing Our Risk of Cancer Empowered

End of Life Issues
Sharing your Wishes
National Hospice and Palliative Care Organization
Hospice Foundation of America

Specific Populations
The Mautner Project: The National Lesbian Health Organization
The LGBT Cancer Project: Out with Cancer
National LGBT Cancer Network
Redes en Acicon
: The National Latino Cancer Research Network
The National Children’s Cancer Society Latina’s Contra Center
The Asian American Network for Cancer Awareness, Research and Training
African Women’s Cancer Awareness Association
Male Cancer Awareness Campaign
Singleton Moms:
Community for Single Parents with Cancer
Mommy and Me Cancer Foundation: Moms with Cancer

Specific Types of Cancer

Bladder
Bladder Cancer Advocacy Network

Brain
American Brain Tumor Association
National Brain Tumor Society

Breast

Breastcancer.org
Living Beyond Breast Cancer
National Breast Cancer Coalition
Susan G. Komen for the Cure

Childhood Cancers

Children’s Brain Tumor Foundation
Starlight Starbright Children’s Foundation

Colorectal

Colon Cancer Alliance (CCA)

Esophageal

Esophageal Cancer Awareness Association 

Kidney

Kidney Cancer Association

Gynecologic Cancers

Foundation for Women’s Cancer
Women’s Cancer Network

Head & Neck Cancers

Support for People with Oral and Head and Neck Cancer (SPOHNC)
Oral Cancer Foundation

Lung

The Lung Cancer Alliance
American Lung Association

Leukemia & Lymphoma

The Leukemia and Lymphoma Society
Lymphoma Foundation of America

Multiple Myeloma

International Myeloma Foundation
The Multiple Myeloma Research Foundation

Ovarian

National Ovarian Cancer Coalition (NOCC)
Ovarian Cancer National Alliance (OCNA)

Pancreatic

Pancreatic Cancer Action Network (PanCAN)

Prostate

National Alliance of State Prostate Cancer Coalitions
Prostate Cancer Foundation
Us TOO!

Skin

American Melanoma Foundation
The Skin Cancer Foundation

Thymic

Foundation for Thymic Cancer Research

Thyroid

Thyroid Cancer Survivors’ Association, Inc.

Urologic

American Urological Association Foundation


Writer's Corner